15 YO With Rare Benjamin Button Genetic Condition Dies, But Leaves An Unexpected Imprint Behind

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When you think of teenagers, you probably think of young people living their best most carefree years and finding themselves. However, the teenage years can also be the most complicated and confusing time in our life as we struggle to understand the world, who we are, and our place in it.

For this US teenager, life was even more complicated. She was diagnosed with Hutchinson-Gilford progeria, also known as Benjamin Button disease when she was three months old. The rare fatal condition meant that her days were numbered from the moment her life started. However, knowing she had a fast-approaching expiration date gave Adalia Rose the motivation to first touch millions of people and leave a big imprint.

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Diagnosed As A Baby With Progeria

Adalia’s journey started when she was just three months old. Her single mom noticed a lack of “growth” in her baby. She grew even more concerned when she noted that the “skin on her tummy was really tight and just different looking.”

Adalia as a baby and her dad
adalia06 / Instagram
adalia06 / Instagram

Doctors also first noticed something was wrong within the first four weeks. Then, Natalia was left devastated by a life-changing diagnosis. The child was diagnosed with Hutchinson-Gilford progeria syndrome, a genetic condition that affects less than 500 children around the world. She remembers how “it was just her and I and I honestly felt lost.”